The Vent and Rant Thread - Page 52

montsnmags · 08-13-2008, 07:57 PM

Quote:

Originally Posted by pshrynk

You were so cute as a child. Who is that you are eating?

My evil twin.

Quote:

Originally Posted by DixieGal

I win. They punch holes in my eyeballs quite often, but the latest effort in June was 3 big holes at the same time. 1 for the camera & tools, 1 for the incoming fluid, and 1 for the suction. But I can still wink!

DixieGal, I love you, darling, but, with respect and no ill will, and with an underlying wish that what you describe is making you all better....

SHUTUP!SHUTUP!SHUTUP!SHUTUP!SHUTUP!SHUTUP!SHUTUP!S HUTUP!
SHUTUP!SHUTUP!SHUTUP!SHUTUP!SHUTUP!SHUTUP!

[I don't mean that last bit, of course.

]

Quote:

Originally Posted by Taylor514ce

...
I do not want to mask my symptoms with medicine. I wish to discover the source of the problem, and discuss possible solutions with a competent, caring medical professional!!

Without at all offering any premise that I have empathy with even the slightest degree of parity with your suffering...yeah, you tell it to the man, brother!

Quote:

THAT's my VENT and RANT for the day. I cannot convey the level of frustration and even anger at having to endure constant pain, and having a neurosurgeon who doesn't want to operate and a neurologist who says he can't do anything else for me "medically". Meaning, what? I'm imaging things?...

Perhaps it means the limits of their specific knowledge has been reached, but, being doctors of a particular type, they don't want to admit that and so imply to themselves that the problem is somehow of your doing, which then comes out in the way they word things. Sucks, and maybe you can help reiterate the symptoms to them in the form you offer for the "next person that asks you" (no, I'm not really suggesting that ~smile~). I can't stomach it when you tell people something is wrong (and this goes for anything) and they say "well, I can't find anything wrong/duplicate the symptoms" as if that's an answer. That's not an answer; it's a failure. I hope you find some better help at the Mayo Clinic.

Quote:

Originally Posted by Taylor514ce

Oh, the Marvin thing was just because Marc needed a robot to make a thread perfect. Marvin was the first to appear in a web search. Then it took on a life of its own here.

So, is this a very subtle and gentle request to "ease up on the Marvin thing" so that you can be more "Taylor"? If so, happy to oblige - Marvin's fun, but know that you've well enough personality of your own to maintain interest, without coming up with other personae, fictional events, hosting fake parties, introducing imaginary friends....umm...I'll shut up now, lest I have incriminated myself.

Quote:

Originally Posted by pshrynk

I think that Marc should be required to be at all Meet-ups, just to avoid confusion.

Oh, I've been there, just at the back, behind the curtain, with a camera and voice recorder.

Quote:

Originally Posted by badgoodDeb

Nah, not hard at all. You just put them in transfusion bags and attach the requisite hoses ..... Voila!

Marc: Nurse! Get me 1000cc's of Zany Carter Deluxe...STAT!
Nurse badgoogDeb: Doctor, that's your own cannula?
Marc: Dammit, nurse, just who is the doctor here?!
Nurse badgoodDeb: Yes, sir [but I ain't holdin' your head out of the porcelain altar again, no sir, no way]
Marc: Ahhhhhhhhhhhhhhhhhh..............................

Cheers,
Doctor Marc

Mindy · 08-14-2008, 04:04 AM

Quote:

Originally Posted by Taylor514ce

I understand that medicine is not an exact science. I understand that symptoms, particularly pain, can come from a baffling array of sources. What I cannot understand is a medical professional simply GIVING UP on a patient, and referring them to a colleague, who also effectively shrugs and suggests yet another pill. I do not want to mask my symptoms with medicine. I wish to discover the source of the problem, and discuss possible solutions with a competent, caring medical professional!!

THAT's my VENT and RANT for the day. I cannot convey the level of frustration and even anger at having to endure constant pain, and having a neurosurgeon who doesn't want to operate and a neurologist who says he can't do anything else for me "medically". Meaning, what? I'm imaging things? The next specialist I see who asks me to describe the pain, I will punch as hard as I can in the face, and say "Like THAT, plus a toothache... and I'm not imagining it."

I'll join in on this one too, although to be fair my actual doctor has been lovely and sympathetic. Unfortunately it'll be up to six weeks left (from 18) before my neurology referral comes through, I have to go for another set of blood tests in the meantime (the first ones showed 'heightened white cell count' so now they need to establish whether whatever infection it was is coming or going - does it matter if it's unrelated to the headaches?)
On the plus side, the more-or-less spaced feeling is keeping work interesting and the fact I'm forgetting sentences half-way through is....
... where am I?
Seriously though, pain is bad. And very, very exhausting.

Mindy · 08-14-2008, 04:06 AM

Hey, we seem to have a pattern here, maybe e-Ink or MRF is messing with our DNA or opening up unused parts of our brains and in a couple of years time we'll all have morphed into superheroes. Or super-llamas. Or something cool, anyway.

GeoffC · 08-14-2008, 07:06 AM

Quote:

Originally Posted by montsnmags

Doctor Marc

courtesy of a kind internet site....

zelda_pinwheel · 08-14-2008, 07:43 AM

Quote:

Originally Posted by Mindy

Hey, we seem to have a pattern here, maybe e-Ink or MRF is messing with our DNA or opening up unused parts of our brains and in a couple of years time we'll all have morphed into superheroes. Or super-llamas. Or something cool, anyway.

superheroes, superllamas, superpandas... any of those would be good. i think you might be right, and it's starting already. i mean, look at pshrynk...

Taylor514ce · 08-14-2008, 09:09 AM

Quote:

Originally Posted by montsnmags

So, is this a very subtle and gentle request to "ease up on the Marvin thing" so that you can be more "Taylor"? If so, happy to oblige - Marvin's fun, but know that you've well enough personality of your own to maintain interest, without coming up with other personae, fictional events, hosting fake parties, introducing imaginary friends....umm...I'll shut up now, lest I have incriminated myself.

You give me entirely too much credit for subtlety. I'm happy to play the robot, especially since Zee-Zee found me an awesome Dr. Demonto song to play.

"MARRR-vin I loooovvvve you. Marvin i LOVE you...."

nekokami · 08-14-2008, 10:04 AM

Oh, I love that song!

Taylor, while not suggesting in any way that your symptoms are not fully real and very painful, have you considered biofeedback? Sort of as a "take back your nervous system" strategy. I've had good luck with it personally regarding pain (and stress) management, and so have quite a few others, some of whom have had symptoms and diagnoses similar to what you're describing.

Taylor514ce · 08-14-2008, 12:29 PM

I have damage to the trigeminal cranial nerve as a result of a head injury about 15 years ago. My recent frustration was due to having perhaps unjustified high expectations. I did another round of CT and MRI scans, and was hoping to hear "ah, yes, here is the problem, tap tap tap, and this is what I can do to fix it."

I heard instead, "The operation I would do would be a vascular decompression, because anything else just isn't indicated. Plus, the operation would be in large part exploratory, because imaging technology... blah blah blah". Then he concluded, "I don't suggest this. Come back to me as a last resort, if the condition worsens and becomes unbearable. Go back to your neurologist, manage it with medication."

Upon reflection, that was an honest, reasonable suggestion - just not the one I wanted to hear!

GeoffC · 08-14-2008, 12:37 PM

Quote:

Originally Posted by Taylor514ce

I have damage to the trigeminal cranial nerve as a result of a head injury about 15 years ago. My recent frustration was due to having perhaps unjustified high expectations. I did another round of CT and MRI scans, and was hoping to hear "ah, yes, here is the problem, tap tap tap, and this is what I can do to fix it."

I heard instead, "The operation I would do would be a vascular decompression, because anything else just isn't indicated. Plus, the operation would be in large part exploratory, because imaging technology... blah blah blah". Then he concluded, "I don't suggest this. Come back to me as a last resort, if the condition worsens and becomes unbearable. Go back to your neurologist, manage it with medication."

Upon reflection, that was an honest, reasonable suggestion - just not the one I wanted to hear!

Very sorry to hear that mate, I have some understanding of what it must be like for the pain from the trigeminal cranial nerve 'cause my wife suffered for a long while during a year long spell of chemo and radiotherapy...
There is not a lot else I can offer except 'keep your chin up' (not easy I know)....keep posting and we shall try and keep you amused with lots of silliness...

Taylor514ce · 08-14-2008, 12:38 PM

And white matter damage, but that is unrelated. Just a ball of fun, aren't we?

Quick, someone make a poopy joke to lighten the mood.

What do you get when you pinch a ghost? A handful of sheet!

pshrynk · 08-14-2008, 02:13 PM

Hypnosis can go a long way toward relief of pain. Especially someone with your mental capacity. Anyone who can learn how to draw in a matter of weeks has a very strong hypnotic capacity. I have had some really good results workign with patients who have neuralgias secondary to a lot of different things. Look for someone who is a member of ASCH, since there are a lot of "hypnotists" out here who should really be shot, then hung.

Taylor514ce · 08-14-2008, 02:35 PM

Wouldn't it be easier to shoot them if you hung them FIRST?

pshrynk · 08-14-2008, 03:14 PM

I like a little challenge in my target practice.

zelda_pinwheel · 08-14-2008, 03:16 PM

nekokami · 08-14-2008, 03:16 PM

Shooting... hanging... Nail 'em up, I say! Nail some sense into 'em!

Er.

I recommend a computer game/program called "The Journey to Wild Divine." Sort of like Myst, only the puzzles are solved with biofeedback exercises. Only about 3x the cost of a typical new computer game. You can get it from http://wilddivine.com or eBay usually has cheaper copies.

And I'm very sorry to hear about your injury, and subsequent difficulties obtaining adequate treatment.

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08-14-2008, 04:06 AM	#768
Mindy Away with the Faeries Posts: 483 Karma: 8459 Join Date: May 2008 Location: Edinburgh, Scotland Device: Sony PRS 650	Hey, we seem to have a pattern here, maybe e-Ink or MRF is messing with our DNA or opening up unused parts of our brains and in a couple of years time we'll all have morphed into superheroes. Or super-llamas. Or something cool, anyway.

08-14-2008, 10:04 AM	#772
nekokami fruminous edugeek Posts: 6,745 Karma: 551260 Join Date: Oct 2006 Location: Northeast US Device: iPad, eBw 1150	Oh, I love that song! Taylor, while not suggesting in any way that your symptoms are not fully real and very painful, have you considered biofeedback? Sort of as a "take back your nervous system" strategy. I've had good luck with it personally regarding pain (and stress) management, and so have quite a few others, some of whom have had symptoms and diagnoses similar to what you're describing.

08-14-2008, 12:29 PM	#773
Taylor514ce Actively passive. Posts: 2,042 Karma: 478376 Join Date: Feb 2008 Location: US Device: Sony PRS-505/LC	I have damage to the trigeminal cranial nerve as a result of a head injury about 15 years ago. My recent frustration was due to having perhaps unjustified high expectations. I did another round of CT and MRI scans, and was hoping to hear "ah, yes, here is the problem, tap tap tap, and this is what I can do to fix it." I heard instead, "The operation I would do would be a vascular decompression, because anything else just isn't indicated. Plus, the operation would be in large part exploratory, because imaging technology... blah blah blah". Then he concluded, "I don't suggest this. Come back to me as a last resort, if the condition worsens and becomes unbearable. Go back to your neurologist, manage it with medication." Upon reflection, that was an honest, reasonable suggestion - just not the one I wanted to hear!

08-14-2008, 12:38 PM	#775
Taylor514ce Actively passive. Posts: 2,042 Karma: 478376 Join Date: Feb 2008 Location: US Device: Sony PRS-505/LC	And white matter damage, but that is unrelated. Just a ball of fun, aren't we? Quick, someone make a poopy joke to lighten the mood. What do you get when you pinch a ghost? A handful of sheet!

08-14-2008, 02:13 PM	#776
pshrynk Beepbeep n beebeep, yeah! Posts: 11,726 Karma: 8255450 Join Date: Apr 2008 Location: La Crosse, Wisconsin, aka America's IceBox Device: iThingie, KmkII, I miss Zelda!	Hypnosis can go a long way toward relief of pain. Especially someone with your mental capacity. Anyone who can learn how to draw in a matter of weeks has a very strong hypnotic capacity. I have had some really good results workign with patients who have neuralgias secondary to a lot of different things. Look for someone who is a member of ASCH, since there are a lot of "hypnotists" out here who should really be shot, then hung.

08-14-2008, 02:35 PM	#777
Taylor514ce Actively passive. Posts: 2,042 Karma: 478376 Join Date: Feb 2008 Location: US Device: Sony PRS-505/LC	Wouldn't it be easier to shoot them if you hung them FIRST?

08-14-2008, 03:14 PM	#778
pshrynk Beepbeep n beebeep, yeah! Posts: 11,726 Karma: 8255450 Join Date: Apr 2008 Location: La Crosse, Wisconsin, aka America's IceBox Device: iThingie, KmkII, I miss Zelda!	I like a little challenge in my target practice.

08-14-2008, 03:16 PM	#779
zelda_pinwheel zeldinha zippy zeldissima Posts: 27,827 Karma: 921169 Join Date: Dec 2007 Location: Paris, France Device: eb1150 & is that a nook in her pocket, or she just happy to see you?

08-14-2008, 03:16 PM	#780
nekokami fruminous edugeek Posts: 6,745 Karma: 551260 Join Date: Oct 2006 Location: Northeast US Device: iPad, eBw 1150	Shooting... hanging... Nail 'em up, I say! Nail some sense into 'em! Er. I recommend a computer game/program called "The Journey to Wild Divine." Sort of like Myst, only the puzzles are solved with biofeedback exercises. Only about 3x the cost of a typical new computer game. You can get it from http://wilddivine.com or eBay usually has cheaper copies. And I'm very sorry to hear about your injury, and subsequent difficulties obtaining adequate treatment.