Register Guidelines E-Books Search Today's Posts Mark Forums Read

Go Back   MobileRead Forums > E-Book General > Writers' Corner

Notices

Reply
 
Thread Tools Search this Thread
Old 09-07-2019, 04:40 AM   #1
Nabeel
Zealot
Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.
 
Nabeel's Avatar
 
Posts: 128
Karma: 611158
Join Date: Sep 2010
Location: Britain
Device: Kobo Aura One
Main Character with Epilepsy

I'm starting a novel in which the main character suffers from epilepsy, apparently makes a complete recovery, but then comes down with it again.

Can anyone recommend sources to find out about this condition? I'm particularly interested in the day-to-day experience of living with it.

The novel's set in the 1940s.

Thank you

Nabeel
Nabeel is offline   Reply With Quote
Old 09-07-2019, 04:50 AM   #2
Cootey
Addict
Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.Cootey ought to be getting tired of karma fortunes by now.
 
Cootey's Avatar
 
Posts: 239
Karma: 2468720
Join Date: Apr 2017
Device: Kobo Aura ONE LE, Kindle Paperwhite 7, iPad Air, iPhone Xs
Quote:
Originally Posted by Nabeel View Post
I'm starting a novel in which the main character suffers from epilepsy, apparently makes a complete recovery, but then comes down with it again.



Can anyone recommend sources to find out about this condition? I'm particularly interested in the day-to-day experience of living with it.



The novel's set in the 1940s.



Thank you



Nabeel


Epilepsy isn’t like the flu. You don’t come down with it. And you don’t make a complete recovery. You go into remission. Some children do grow out of epilepsy. My daughter is turning 18 this year and for the first time in her life she hasn’t had a seizure in months. We almost don’t know what to do with ourselves. However, we are cautious. My brother went into remission when he was a teenager, but began having seizures again in college. You never know.

Here’s a list of books you might find useful: https://www.epilepsysociety.org.uk/g...t#.XXNvIyVMHDs


Sent from my iPhone using Tapatalk Pro
Cootey is offline   Reply With Quote
Old 09-08-2019, 04:01 AM   #3
Nabeel
Zealot
Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.Nabeel ought to be getting tired of karma fortunes by now.
 
Nabeel's Avatar
 
Posts: 128
Karma: 611158
Join Date: Sep 2010
Location: Britain
Device: Kobo Aura One
Thank you Cootey: that's a very useful website.
Nabeel is offline   Reply With Quote
Old 09-09-2019, 11:52 AM   #4
Hitch
Bookmaker & Cat Slave
Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.
 
Hitch's Avatar
 
Posts: 7,855
Karma: 76070063
Join Date: Apr 2010
Location: Phoenix, AZ
Device: K2, iPad, KFire, PPW, Voyage, and NookColor. 2 Droid, 1 Win8 ePUB rdrs
Quote:
Originally Posted by Nabeel View Post
Thank you Cootey: that's a very useful website.
If I may--as I have a cousin whose entire life has been affected by epilepsy, in some not-great ways--I really feel that you need to learn a LOT MORE about epilepsy before you create a protagonist therewith.

I mean...yes, there are different types of epilepsy, but it's not, as Cootey says, like the flu. You don't "catch it" and you don't "come down with it." It's not contagious. I think you run the risk of seriously offending a lot of epileptics and their families if you don't do quite a bit more research before you continue writing about him/her.

Or, perhaps, there's another condition that might suit your plotline better? I mean...what made you think of epilepsy, in the first place, since, with all due respect, you're obviously not that familiar with it? What is it you need, illness- or condition-wise, to make your plot work? Maybe the good folks here at MR could help you find something that works better for you?

FWIW.

Hitch
Hitch is offline   Reply With Quote
Old 09-09-2019, 06:35 PM   #5
skb
Addict
skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.
 
skb's Avatar
 
Posts: 292
Karma: 1593500
Join Date: Mar 2010
Device: Ipod G4, MacOS 10.12, Calibre, Kindle Paperwhite
I agree with Hitch.

There used to be a wonderful community on Live Journal (maybe called...Little Details) where you could get "maladies to order". That is, you give the group the problems you want your character to suffer from (ranging from gunshot wounds to other physical problems like being unable to survive for X time period without meds etc) and the group would supply an illness or location of injury that would likely fit.
Having said that, they would encourage further research in detail. Because little details.

It was also handy for random suggestions for google-ness about living conditions for various locations & time periods. Some of the advice was ordinary, but some of the topics and replies were genuinely interesting (think TV Tropes for writers).
skb is offline   Reply With Quote
Old 09-09-2019, 09:23 PM   #6
Hitch
Bookmaker & Cat Slave
Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.
 
Hitch's Avatar
 
Posts: 7,855
Karma: 76070063
Join Date: Apr 2010
Location: Phoenix, AZ
Device: K2, iPad, KFire, PPW, Voyage, and NookColor. 2 Droid, 1 Win8 ePUB rdrs
Quote:
Originally Posted by skb View Post
I agree with Hitch.

There used to be a wonderful community on Live Journal (maybe called...Little Details) where you could get "maladies to order". That is, you give the group the problems you want your character to suffer from (ranging from gunshot wounds to other physical problems like being unable to survive for X time period without meds etc) and the group would supply an illness or location of injury that would likely fit.
Having said that, they would encourage further research in detail. Because little details.

It was also handy for random suggestions for google-ness about living conditions for various locations & time periods. Some of the advice was ordinary, but some of the topics and replies were genuinely interesting (think TV Tropes for writers).

Ooooh, what a wonderful-sounding group!!! I take it that they have gone the way of (most) long-form user communities, by and large, having been replaced with 140-character epic sagas full of info? (/sarcasm about Twitter and other short-form "communication" systems...)

Hitch
Hitch is offline   Reply With Quote
Old 09-10-2019, 12:20 PM   #7
GlenBarrington
Cheese Whiz
GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.GlenBarrington ought to be getting tired of karma fortunes by now.
 
GlenBarrington's Avatar
 
Posts: 1,859
Karma: 9536361
Join Date: Jan 2010
Location: Springfield, Illinois
Device: Kindle PW2, Samsung Tab A 10.1(2019), Pixel 3a.
Quote:
Originally Posted by Hitch View Post
Ooooh, what a wonderful-sounding group!!! I take it that they have gone the way of (most) long-form user communities, by and large, having been replaced with 140-character epic sagas full of info? (/sarcasm about Twitter and other short-form "communication" systems...)

Hitch
Maybe we could develop such a subforum! It might make the Writer's Corner a bit more active. I know something about type 2 diabetes, and deafness! (Well, that, and being too good looking. A bigger burden than you might think)
GlenBarrington is offline   Reply With Quote
Old 09-10-2019, 04:52 PM   #8
Hitch
Bookmaker & Cat Slave
Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.
 
Hitch's Avatar
 
Posts: 7,855
Karma: 76070063
Join Date: Apr 2010
Location: Phoenix, AZ
Device: K2, iPad, KFire, PPW, Voyage, and NookColor. 2 Droid, 1 Win8 ePUB rdrs
Quote:
Originally Posted by GlenBarrington View Post
Maybe we could develop such a subforum! It might make the Writer's Corner a bit more active. I know something about type 2 diabetes, and deafness! (Well, that, and being too good looking. A bigger burden than you might think)
Yup, that's a tough one to bear through life, indeed.

You know, it's NOT a bad idea at all...Hmmm...mods? Whatcha think?

Hitch
Hitch is offline   Reply With Quote
Old 09-10-2019, 05:30 PM   #9
skb
Addict
skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.
 
skb's Avatar
 
Posts: 292
Karma: 1593500
Join Date: Mar 2010
Device: Ipod G4, MacOS 10.12, Calibre, Kindle Paperwhite
I just checked and...it's still kicking.

If you're a bit sensitive, just be aware that there are quite a few "fanfiction" based questions, but even those have the potential to be interesting e.g. the latest post is asking about "good natured insults from Brooklyn", but the following post is, indeed, an "injury to order" question.

https://little-details.livejournal.com/

Edited to add: I should add that not all the answers are...er, answers. Sometimes it's just chat.

Last edited by skb; 09-10-2019 at 05:35 PM.
skb is offline   Reply With Quote
Old 09-10-2019, 05:45 PM   #10
Hitch
Bookmaker & Cat Slave
Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.Hitch ought to be getting tired of karma fortunes by now.
 
Hitch's Avatar
 
Posts: 7,855
Karma: 76070063
Join Date: Apr 2010
Location: Phoenix, AZ
Device: K2, iPad, KFire, PPW, Voyage, and NookColor. 2 Droid, 1 Win8 ePUB rdrs
Quote:
Originally Posted by skb View Post
I just checked and...it's still kicking.

If you're a bit sensitive, just be aware that there are quite a few "fanfiction" based questions, but even those have the potential to be interesting e.g. the latest post is asking about "good natured insults from Brooklyn", but the following post is, indeed, an "injury to order" question.

https://little-details.livejournal.com/

Edited to add: I should add that not all the answers are...er, answers. Sometimes it's just chat.
I don't mean to be dense, but sensitive ...to what? Fanfiction?

Hitch
Hitch is offline   Reply With Quote
Old 09-11-2019, 04:32 PM   #11
skb
Addict
skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.skb ought to be getting tired of karma fortunes by now.
 
skb's Avatar
 
Posts: 292
Karma: 1593500
Join Date: Mar 2010
Device: Ipod G4, MacOS 10.12, Calibre, Kindle Paperwhite
Yes, fanfiction is the red headed step child of the writing world and some people get sniffy about it.

I'll read bus tickets. I have to have something to read whenever I'm still. So I'm not "afraid" to read it. There is a lot of dross but honestly, I have read stuff that puts a lot of "real" published authors to shame. In fact, I've often wondered if those fanfic authors ever published professionally etc (I enjoyed their work so much that were "ripping yarns").
skb is offline   Reply With Quote
Old 09-20-2019, 08:21 PM   #12
MarjaE
Evangelist
MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.MarjaE ought to be getting tired of karma fortunes by now.
 
Posts: 454
Karma: 1548692
Join Date: Jun 2015
Device: Iriver Story HD and Amazon Kindle DX
Also, epilepsy has incredible variety in both triggers and symptoms. For example, partial and absence seizures.
MarjaE is offline   Reply With Quote
Old 09-25-2019, 02:56 PM   #13
FrustratedReader
Busy elsewhere
FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.FrustratedReader ought to be getting tired of karma fortunes by now.
 
FrustratedReader's Avatar
 
Posts: 720
Karma: 3327246
Join Date: Jun 2017
Device: Various
Quote:
Originally Posted by Nabeel View Post
I'm starting a novel in which the main character suffers from epilepsy, apparently makes a complete recovery, but then comes down with it again.

Can anyone recommend sources to find out about this condition? I'm particularly interested in the day-to-day experience of living with it.

The novel's set in the 1940s.
Epilepsy is a "catch all" tag for very many conditions. It is NOT a single disease!
You do not "catch it". It's rare that it's not diagnosed before adulthood. But Adult onset cases do exist.
People might have a few epileptic attacks in their life and never know if they were sitting or asleep.

Consult with your local Epilepsy association and online Epilepsy association resources before even considering having such a character.

Some are due to brain damage
Some are due to different unrelated genetic reasons
Some are also suffer with poor cognition, others are unrelated, i.e. An athletic genius could suffer from it.
Some are fatal in childhood
Maybe a 1/3rd have no known cause.
There is from birth, child hood onset and adult onset (rare) conditions.

There are about 6 types of fit/episode/seizures. Some sorts of epilepsy have only one kind of episode. One kind has all of them
There can be a 20 second loss of consciousness without convulsions (used to be called Petit Mal). Risk is injury from falling.
There can be slurring of speech and partial loss of motor control / incontinence.
There can be convulsions and different phases with a long recovery afterwards (used to be called Grand Mal)

Frequency can be from many times a day to monthly.

Many (Maybe near 70% even in 1940s) can be managed with drugs, ECT, brain surgery or diet. Or even avoiding triggers. Before drugs and ECT and surgery only management was a special diet (1920s) called the Ketogenic diet. It's still a good idea to try for the 30% or so that are not helped by drugs. The "Atkins Diet" is dangerous Celebrity diet based on it.
Generally brain surgery is tried on people with already a severe cognitive disability where the episodes are dangerous and frequent and nothing else works.

ECT is controversial for ANYONE (how many are helped and side effects of temporary memory loss, cognitive impairment etc).

Only a tiny percent are managed by avoiding triggers (like getting too tired).
Maybe only 3% to 5% have video / lights / flashing as a trigger.

There isn't really a cure, because we don't know what it is. If drugs, change of lifestyle or whatever results in no "attacks" for five years some countries will allow a driving licence. Often if the drugs are stopped, or diet dropped, or triggers not avoided the symptoms return.

Ireland is fairly typical of the West for this:
Population 4.75 million in the Republic of Ireland. About 440,000 suffer from Epilepsy (but many of those people, perhaps 80% are living totally normal lives. Perhaps it's completely managed for 75%), that though might include NI, I'm not sure.

Commonest cause of injury is falling.
Commonest cause of death is drowning in the bath. Totally avoidable.

There isn't really any typical type.

Last edited by FrustratedReader; 09-25-2019 at 02:59 PM.
FrustratedReader is offline   Reply With Quote
Reply

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Name of a character help skb Writers' Corner 33 08-21-2018 05:25 PM
sci-fi/fantasy book with super interesting main character wanderbeald Reading Recommendations 18 04-16-2017 05:24 AM
Novels in which animals are the main character crich70 Reading Recommendations 53 12-24-2014 04:09 AM
Books where the main character keeps a secret from the reader? K. Molen General Discussions 25 05-31-2012 08:00 PM
Unutterably Silly Name this character! AprilHare Lounge 7 08-23-2009 05:01 PM


All times are GMT -4. The time now is 10:05 AM.


MobileRead.com is a privately owned, operated and funded community.