Seriousness Prayers and Thoughts - Page 3

Lady Blue · 07-28-2009, 11:17 AM

Praying for blessings on you all, for a full recovery for your brother, and comfort and strength for the entire family.

rebarnmom · 07-28-2009, 02:52 PM

How long ago was Aaron diagnosed? And you lost your younger brother to this same type of cancer? How much at risk does that put you? Is stem cell replacement therapy an option for this type of cancer? You being his twin, would you be a candidate to donate stem cells? I used to work in a cancer center years ago and I know how fast spreading T-cell can be, though I'm no expert. My job was in the cancer registry, purely clerical. Well prior to that I did do some work in clinical trials, but that was too close to the patient for me. It takes a special person to work closely with cancer patients and I'm much better with paperwork and computers).

I thank God for his continued improvement! I really can't imagine how hard this is, not only for your brother, but for your whole family (having gone through this once before). Aaron, you and your family are still in my prayers.

roger the rabbit · 07-28-2009, 04:06 PM

Hi Griffonwing I'm not a regular here but my thoughts are with you, your brother and family at this difficult time.

griffonwing · 07-29-2009, 09:35 AM

Quote:

Originally Posted by rebarnmom

How long ago was Aaron diagnosed? And you lost your younger brother to this same type of cancer? How much at risk does that put you? Is stem cell replacement therapy an option for this type of cancer? You being his twin, would you be a candidate to donate stem cells? I used to work in a cancer center years ago and I know how fast spreading T-cell can be, though I'm no expert. My job was in the cancer registry, purely clerical. Well prior to that I did do some work in clinical trials, but that was too close to the patient for me. It takes a special person to work closely with cancer patients and I'm much better with paperwork and computers).

I thank God for his continued improvement! I really can't imagine how hard this is, not only for your brother, but for your whole family (having gone through this once before). Aaron, you and your family are still in my prayers.

My great grandmother died from T-Cell NHL. My younger brother was (my opionion, mis-) diagnosed with Sarcoidois, so they put him on steroids, which brought out a latent condition of Pulmonary Hypertension. He was a truck driver, and nearly fainted one day in Idaho. My twin (they were team drivers) hauled him back here and he was hospitalized on a Sat, moved to Springfield Mo on Sun, and died on Thurs. This took place two weeks after my grandfather passed away from colon cancer.

It's very likely that I might also have T-Cell, although so far there have been no symptoms. My current line of work doesn't offer health ins, as it's a small family-run business. My last attempt at buying insurance failed due to me having a couple existing heart conditions. A heart murmer (which nearly everyone has this to varying degrees), and pulmonary stenosis, which basically means my heart has to pump a bit harder to supply my lungs with blood, as the vein is narrower than normal. Yet I am some kind of health risk.

My twin was diagnosed with T-Cell (after multiple lab tests) in January. He's had some other chemo, before they used the port. They would have used radiation, but the tumor is about 5-6 inches across, pressing between his heart and lungs. Thankfully, it's not enmeshed in the other organs, just pressing against.

As for stem cells. I'm not sure. I don't know how those work exactly. We are fraternal. Look nothing alike, act nothing alike. Different blood types. So I'm not really sure.

I thank everyone for your support. I just received a text this morning, his BP is 125/74 (YAY), and his pulse Oxygen is 90, which is very good news. (YAY) His heart rate is 153, too high, but they had just been working on him, so it's most-likely stress-related. His liver is the main thing at the moment it is not functioning very well. this keeps him from being able to receive Tylenol for his fever.

I informed my mother of this thread, and she wanted me to convey her heartfelt thanks to everyone. This goes double for me.

gw

DixieGal · 07-29-2009, 09:56 AM

All of those vital signs are good news! I'm still hoping and praying that today will be even better than the day before!

Hopefully they will transfuse him enough that his own body will soon be able to fight off the infection, and that he can get back to his regular chemo schedule very soon.

Hugs to you and yours!

Lady Blue · 07-29-2009, 10:00 AM

Glad to hear there is some improvement. Hopefully the news will just keep getting better.

griffonwing · 07-29-2009, 11:42 AM

9:00 am update:

BP - 107/62
(good)
MAP OX (how well the blood is being pumped into each organ) - 80
(docs want it above 72, so this is good)
Heart Rate is 135 (lower than before, good)
Temp has dropped now from a constant 101.3 to 98.3 (YAY)
Pulse Ox is 83 (dunno what this means)

A few more hurdles to go, but the liver is the meanest.

MickeyC · 07-29-2009, 11:45 AM

My thoughts are with you.

Verencat · 07-29-2009, 11:55 AM

Oh, the temp drop is good news! Hugging you all and sending you all the positive and the energy that's in me!

griffonwing · 07-29-2009, 01:42 PM

Just got a call from my mom. An emergency. Aaron crashed. His numbers plummeted. They brought in some specialists, and he does have his own pulse. But as for what all.. I dunno. I was just told that he crashed, but he does have a pulse.

Praying for a miracle.

Lady Blue · 07-29-2009, 01:51 PM

That's sad news. I'm so sorry to hear. I certainly AM praying for your brother, as I'm sure we all are, for that miracle of improvement. We're covering you all in hugs, prayers and good wishes.

lilac_jive · 07-29-2009, 01:53 PM

Sorry to hear he's getting worse. I'll be praying for him.

griffonwing · 07-29-2009, 02:06 PM

I'd like to thank everyone for their continued support and prayers.

I just received a call from my mother that Aaron passed away a few minutes ago.

I'm going to go offline for a bit. Need to call some friends/relatives.

anthony

Verencat · 07-29-2009, 02:13 PM

Oh Anthony I'm so sorry.
Take all the time you need, we'll be here thinking of you and your family.

DixieGal · 07-29-2009, 02:34 PM

NO! Oh Sweetie, I'm just devastated about this!

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07-28-2009, 11:17 AM	#31
Lady Blue the snarky blue one Posts: 6,001 Karma: 3877825 Join Date: Mar 2009 Location: deep in the heart Device: PRS500, 505 & 600, PRST1 & T2, Kindle PW, Moto Razr, Galaxy Tab 2-10"	Praying for blessings on you all, for a full recovery for your brother, and comfort and strength for the entire family.

07-28-2009, 02:52 PM	#32
rebarnmom Wizard Posts: 1,289 Karma: 4525055 Join Date: Oct 2008 Location: rural Illinois, USA Device: Sony PRS-700 (traded in), Sony PRS-650	How long ago was Aaron diagnosed? And you lost your younger brother to this same type of cancer? How much at risk does that put you? Is stem cell replacement therapy an option for this type of cancer? You being his twin, would you be a candidate to donate stem cells? I used to work in a cancer center years ago and I know how fast spreading T-cell can be, though I'm no expert. My job was in the cancer registry, purely clerical. Well prior to that I did do some work in clinical trials, but that was too close to the patient for me. It takes a special person to work closely with cancer patients and I'm much better with paperwork and computers). I thank God for his continued improvement! I really can't imagine how hard this is, not only for your brother, but for your whole family (having gone through this once before). Aaron, you and your family are still in my prayers.

07-28-2009, 04:06 PM	#33
roger the rabbit Addict Posts: 316 Karma: 10215 Join Date: Apr 2009 Location: Wherever I lay my hat! Device: Sony PRS-T3, 650 Black, 505, Kobo Glo HD Aura ONE	Hi Griffonwing I'm not a regular here but my thoughts are with you, your brother and family at this difficult time.

07-29-2009, 09:56 AM	#35
DixieGal Hi There! Posts: 7,473 Karma: 2930523 Join Date: Feb 2008 Location: Ft Lauderdale Device: iPad	All of those vital signs are good news! I'm still hoping and praying that today will be even better than the day before! Hopefully they will transfuse him enough that his own body will soon be able to fight off the infection, and that he can get back to his regular chemo schedule very soon. Hugs to you and yours!

07-29-2009, 10:00 AM	#36
Lady Blue the snarky blue one Posts: 6,001 Karma: 3877825 Join Date: Mar 2009 Location: deep in the heart Device: PRS500, 505 & 600, PRST1 & T2, Kindle PW, Moto Razr, Galaxy Tab 2-10"	Glad to hear there is some improvement. Hopefully the news will just keep getting better.

07-29-2009, 11:42 AM	#37
griffonwing Suave Swabby, Savvy? Posts: 1,602 Karma: 520350 Join Date: Jun 2008 Location: Harrison, ARrrr, USA - southern Ozark mountains Device: Slate Blue PEZ (Astak Pocket Pro), CVSCX-9300 Quad-band watch phone	9:00 am update: BP - 107/62 (good) MAP OX (how well the blood is being pumped into each organ) - 80 (docs want it above 72, so this is good) Heart Rate is 135 (lower than before, good) Temp has dropped now from a constant 101.3 to 98.3 (YAY) Pulse Ox is 83 (dunno what this means) A few more hurdles to go, but the liver is the meanest.

07-29-2009, 11:45 AM	#38
MickeyC Grand Sorcerer Posts: 16,731 Karma: 12185114 Join Date: Nov 2007 Location: Florida Device: iPhone 6 plus, Sony T1, iPad 3	My thoughts are with you.

07-29-2009, 11:55 AM	#39
Verencat Wizard Posts: 2,615 Karma: 96491 Join Date: May 2009 Location: Montreal, Qc Device: xxx	Oh, the temp drop is good news! Hugging you all and sending you all the positive and the energy that's in me!

07-29-2009, 01:42 PM	#40
griffonwing Suave Swabby, Savvy? Posts: 1,602 Karma: 520350 Join Date: Jun 2008 Location: Harrison, ARrrr, USA - southern Ozark mountains Device: Slate Blue PEZ (Astak Pocket Pro), CVSCX-9300 Quad-band watch phone	Just got a call from my mom. An emergency. Aaron crashed. His numbers plummeted. They brought in some specialists, and he does have his own pulse. But as for what all.. I dunno. I was just told that he crashed, but he does have a pulse. Praying for a miracle.

07-29-2009, 01:51 PM	#41
Lady Blue the snarky blue one Posts: 6,001 Karma: 3877825 Join Date: Mar 2009 Location: deep in the heart Device: PRS500, 505 & 600, PRST1 & T2, Kindle PW, Moto Razr, Galaxy Tab 2-10"	That's sad news. I'm so sorry to hear. I certainly AM praying for your brother, as I'm sure we all are, for that miracle of improvement. We're covering you all in hugs, prayers and good wishes.

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07-29-2009, 01:53 PM	#42
lilac_jive Grand Sorcerer Posts: 5,870 Karma: 27376 Join Date: Dec 2008 Location: Pennsylvania Device: PRS-505	Sorry to hear he's getting worse. I'll be praying for him.

07-29-2009, 02:06 PM	#43
griffonwing Suave Swabby, Savvy? Posts: 1,602 Karma: 520350 Join Date: Jun 2008 Location: Harrison, ARrrr, USA - southern Ozark mountains Device: Slate Blue PEZ (Astak Pocket Pro), CVSCX-9300 Quad-band watch phone	I'd like to thank everyone for their continued support and prayers. I just received a call from my mother that Aaron passed away a few minutes ago. I'm going to go offline for a bit. Need to call some friends/relatives. anthony

07-29-2009, 02:13 PM	#44
Verencat Wizard Posts: 2,615 Karma: 96491 Join Date: May 2009 Location: Montreal, Qc Device: xxx	Oh Anthony I'm so sorry. Take all the time you need, we'll be here thinking of you and your family.

07-29-2009, 02:34 PM	#45
DixieGal Hi There! Posts: 7,473 Karma: 2930523 Join Date: Feb 2008 Location: Ft Lauderdale Device: iPad	NO! Oh Sweetie, I'm just devastated about this!