The Vent and Rant Thread

[badgoodDeb]

Originally Posted by BetterRed

Please do, any port in a storm.

It's not so much the stiffness and loss of tactile sense that bothers me, it's the loss of balance… and the consequent inability to negotiate stairs and broken footpaths/sidewalks/pavements etc.

This was from an advertisement, so take with a grain of salt, but a shoe insole seller said that the normal "really soft insoles" are bad for one's balance, cuz your foot doesn't know where the ground is. It made sense, so I bought their AKUSOLI inserts and have liked them. I swap back occasionally if something gets sore, but I come back to these and they seem to make walking better. They're flatter, with magnet inserts -- but they feel surprisingly good and helpful. Amazon has them. search them for B0F2F64DCN or B0F2F6NSDH (I forget if actual URL's are a problem?)

Creams, etc:
Mama Bear Oasis magnesium cream - it sinks in really nicely, so I like it better than the cheaper brand I also have and use. $35 once (Amazon; search Amazon for B0DJYXR31R since there are many copiers), and since I liked it I went to their home site (www dot mamabearoasis dot com ) and got a 6 at $20 ea package, then an sell-more push I added 3 more for $15 each. If you can handle the bill, that gets you 9 jars to use at leisure. I'll go back for more when I finish those. It's relieving my shoulder joint aches.

Lune Nerve Balm also on Amz ($60) and then slightly cheaper at home web site (www dot luneusa dot com). Beware the click box for "auto re-ship in 4 weeks", but I liked it, so I'll keep using it. Magnesium plus other stuff. Sometimes I use Lune then top it with another magnesium cream. Feet, so far.

Cheaper, slightly stickier feel, but great for knees, hands, feet (see previous item): Magnum Nighttime Magnesium Lotion. Currently $15; has been $10; B0F1QHNFJP -has with or without Lavender versions, at Amz. Also soothed my "restless legs" in the middle of the night, a few days ago.

Magnesium really seems to help lots of things - arthritis, muscle cramps, restless legs, and neuropathy pins and needles. I've "taken" magnesium for 10+ years, but rubbing it on the skin helps more obviously.

I've been trying lots of things shown me on facebook.

FrostAid.com also has a penetrating cream/lotion that claims to support the nerve health. I can't prove that it does, but it relieves the pain without magnesium. I'm going to keep using it, to see if any healing actually occurs, tho they say you have to keep using to see change. I guess after 6 months I may stop; except that it does relieve pain, so there's that at least.

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I just got neuropathy around Dec 2025, but since the doctor offers nothing, I'm seeing whether herbal medicine can do better. I don't want to wait till nerves are wholly dead, so I'm trying scads of potions. (err, not internally, since my blood thinners require I be more careful of what I swallow)

Good luck!
Deb

edit: just looked you up; you are in Australia. Maybe use the USA amazon.com to check my part numbers, then move to your version to actually find the product??

[BetterRed]

Originally Posted by badgoodDeb

. . . I just got neuropathy around Dec 2025, but since the doctor offers nothing, I'm seeing whether herbal medicine can do better. I don't want to wait till nerves are wholly dead, so I'm trying scads of potions. (err, not internally, since my blood thinners require I be more careful of what I swallow)

Good luck!
Deb

edit: just looked you up; you are in Australia. Maybe use the USA amazon.com to check my part numbers, then move to your version to actually find the product??

Thanks Deb.

I have a couple of pairs of bespoke orthotic insoles from my podiatry clinic. They have a factory that creates them on 3D printers from images of client's feet. They do help.

On Tuesday I saw a consultant physiotherapist at the hospital. The doctors & physios who treated me while I was a patient arranged it. It's a major teaching hospital attached to Sydney University.

I've seen quite a few physios over the past decade or so… in hospitals, physio clinics, gyms etc… few if any would have been older than 40, and all very fit and healthy. But the one I saw on Tuesday would have been in her sixties, overweight, with walking problems. She asked lots of questions, some more than once but with different phrasing, with follow up questions if my answers were inconsistent… reminded me of University tutors 50+ years ago.

And she wrote copious notes… in purple on yellow legal notepaper!

She noticed how I used my walking stick. On flat surfaces, I only use it when standing still, turning around, negotiating un-railed steps and such. But she wants me to use it when I'm walking, not as a prop to hold me up, but to tap the ground with each step to send a signal to my brain to let it know where the ground under my feet actually is.

She is of the opinion that my peripheral neuropathy has multiple underlying causes. After our session she asked me to wait while she discussed my case with one of the consultant neurologists. As a result I'll be seeing him on the 25th.

Despite the adverse events arising from my fall… getting Covid-19 in hospital, the robbery whilst was there etc… I seem to have found a channel within the health system that doesn't just shrug and tell me… if its not diabetes, or excessive alcohol we don't know what it is… you should walk more and drink a litre and half of water a day.

Before trying the magnesium remedies I'll consult with my "Care Team". Maybe it's the same elsewhere, but the individuals in my "Care Team" don't communicate with one another… it's me that has to fulfil the role of Team Leader. Example: I have to finagle the system to get the data the hospital extracts from my pacemaker once a year to my electro-cardiologist.

BR