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All you can hope to get from general forums like this are the standard responses suitable for more typical RSI situations - and it sounds like you've tried a lot of those already. And, let's face it, a lot of ergonomic stuff sold on the 'net are gimmicks with little or no good evidence that they make any difference.
So I think meeera is right. From what I've read here your situation is not typical RSI - it may not even be RSI - and to get useful help you will need in-person consultations. I see you have also tried some, but the best I can suggest is that you need to keep on trying until you find someone that can help. If it was me, I would start with my GP. Make sure you don't have some other chronic condition, and then get referrals to relevant people from there.
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