Quote:
Originally Posted by Hitch
Yes, he's having a really hard time. Between the half-unconscious the whole day part, and the "everything tastes weird" part, poor kid, he's just not having fun. BUT: he's alive. And based upon what his cardiac guy said, we're lucky. So...
And that's the way I feel about the genetics. I was really lucky in a lot of things, so I guess I gotta take the crap with the good.
Yes, Marfan's: it killed a friend of mine, a horse trainer. She was horseback one day and simply keeled over dead. She wasn't even 30. Shocking as hell, although she knew she had it and knew that her lifespan wasn't going to be normal. Bugger.
Hitch
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I hope he feels better! Ask the Doc about other medications he might switch to that might help.
Yeah, sometimes all you can do is pour yourself a drink and play your "Monty Python Sings" album.
Or read. There is one surprising benefit of TS. We may be short and infertile (actually, I consider that one a plus), prone to hypothyroid and BAV,prone to being hard of hearing, be somewhat aspburgery and social-awkward-penguinish, and bad at math but, by God, we can rock some reading skills:
http://www.ncbi.nlm.nih.gov/pubmed/8800619